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Tag: mutant

Stranger Than Fiction

Thank you for all of the kind words, encouragement, solidarity, and even generous gifts during the run up to my tumor removal surgery last week. I’ve just returned from my post-op appointment with my gynecologic oncologist, so I can finally share an update on my condition. Long story short: I’m “recovering like a champ” and will be able to shave a week or two off my initial recovery estimates. But the full story is much stranger. Read on if you dare – things get a little gory. A Recap: The Plan In November 2006, I had an emergency laparotomy to…

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Blood Discrimination

I’ve posted before about my adventures with hemachromatosis, and my negative experiences with the Puget Sound Blood Center. Things since the last post hadn’t improved tremendously, but I still went (out of my way) to perform my therapeutic phlebotomies there since it was contributing healthy blood to the public blood supply. Now, normally, when I arrive at the blood center: 0) Call special hotline to make therapeutic appointment 1) Sign in with the volunteer. Explain that it is a therapeutic donation. 2) Volunteer says, “Oh, *I* can’t sign you in but someone will be over shortly.” Places Red Folder of…

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The Iron Maiden

Yesterday, I went in for a monthly phlebotomy (ie bloodletting) as ordered by my doctor. You see, I have a genetic condition called Hereditary Hemachromatosis, which was diagnosed in 2008. (It surfaced about 30 years earlier than normal for women). My “treatment” is to go to the blood center and donate blood, sometimes more frequently than is typically allowed without a prescription. Hemachromatosis is essentially the opposite of anemia. Your body absorbs iron too well – which may sound awesome to anemics, but iron can only leave your body in blood, and as it builds up in organs it can…

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